I NEED A CURE NF2 BioSolutions Axe Throwing Fundraiser
I volunteered to photograph a very special event for NF2 BioSolutions non-profit fundraiser event at Tilted Axes in West Chester February 2nd 2019th. It was there first fundraiser event with all most 500 people attending and raising $35,000 to find a cure. This rare disease has affected a lil boy I love so much and I was honored to be apart of such an amazing event. I hope you all enjoy the pictures. We won’t stop till we find a cure.
NF2 is a rare genetic disorder that affects approximately 1/30,000 individuals globally. NF2 uniformly results in the growth of multiple tumors throughout the central and peripheral nervous systems, including schwannomas, meningiomas, and ependymomas. The cause of these tumors is a defect in the NF2 gene. The NF2 gene encodes for a protein called Merlin. Merlin functions as tumor suppressor that in healthy individuals prevents the growth of tumors.
Gene Therapy is changing the world of genetic diseases. Gene therapy targets the underlying cause of a disease and has the potential to replace the faulty NF2 gene with a healthy copy of the gene or to cause existing tumor cells to die off through a process called apoptosis.
For more information on NF2 BioSolutions please check out there website nf2biosolutions.org
Location Tilted Axes
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